For the past several years, the National Institutes of Health investment in MS-related research has been declining. You've contacted your legislators many times to ask for increased multiple sclerosis research funding through the NIH.
Finally, the research community is being reinvigorated through significant money allocated to the NIH from the American Recovery and Reinvestment Act of 2009.
Send a quick email to the White House. Thank President Obama for his commitment to science and research. Urge him to continue to make research a priority for FY 2011. It is important for the NIH and for multiple sclerosis research to make this funding permanent. The President will determine what funding to recommend for the NIH before the end of this year. Send your message today.
Tuesday, November 24, 2009
Wednesday, October 28, 2009
Chat with White House Advisor Valerie Jarrett
You are invited to an online chat with White House Senior Advisor Valerie Jarrett to discuss how health insurance reform will impact minority communities and all Americans.
3:30 p.m. EST, Monday, November 2
Click here to submit your questions today.
Join on Monday at WhiteHouse.gov or at Facebook.com/WhiteHouse.
Monday, October 26, 2009
In the News: Oregon Politician Lives with Multiple Sclerosis
Bill Bradbury isn't just running for Oregon governor. He's zipping — on a Segway.
Using the personal transporter is one way the Democratic politician deals with the effects of multiple sclerosis. He was diagnosed with the disease 30 years ago, but that hasn't stopped him from becoming one of the most exuberant and popular figures on Oregon's political scene.
Tall and lanky, he glides into campaign events on his electric standup vehicle, his booming laugh often heralding his arrival. The disease has affected his physical skills, he says, but not his mental abilities or his capacity to govern.
"I get energized by the challenge of this campaign," he says. "I really feel like the disability doesn't interfere with my ability to serve the people of this state."
The is an excerpt from an Associated Press article that ran in the New York Times on October 24. Read more here.
Using the personal transporter is one way the Democratic politician deals with the effects of multiple sclerosis. He was diagnosed with the disease 30 years ago, but that hasn't stopped him from becoming one of the most exuberant and popular figures on Oregon's political scene.
Tall and lanky, he glides into campaign events on his electric standup vehicle, his booming laugh often heralding his arrival. The disease has affected his physical skills, he says, but not his mental abilities or his capacity to govern.
"I get energized by the challenge of this campaign," he says. "I really feel like the disability doesn't interfere with my ability to serve the people of this state."
The is an excerpt from an Associated Press article that ran in the New York Times on October 24. Read more here.
Tuesday, October 20, 2009
In the News: City Officials in Wheelchairs for a Day
As he approached the elevator doors in town hall, Edison Mayor Jun Choi swung his wheelchair around and backed his way in. From there, he pushed the metal wheels from the tax office to the clerk's desk, out the front door and over to the courtroom and police station.
Choi isn't disabled. Nor is Edison Police Chief Thomas Bryan. But the two rolled around town hall in manual wheelchairs yesterday to see how well the building is adapted to the handicapped. Following them in a motorized chair was Jackie Jackson, a South Plainfield disability activist who organizes the accessibility tours in conjunction with the Multiple Sclerosis Society.
This is an excerpt from an October 15 article in the New Jersey Star-Ledger. Read the full story.
Choi isn't disabled. Nor is Edison Police Chief Thomas Bryan. But the two rolled around town hall in manual wheelchairs yesterday to see how well the building is adapted to the handicapped. Following them in a motorized chair was Jackie Jackson, a South Plainfield disability activist who organizes the accessibility tours in conjunction with the Multiple Sclerosis Society.
This is an excerpt from an October 15 article in the New Jersey Star-Ledger. Read the full story.
Friday, October 16, 2009
Support Affordable Access to Prescription Medications
On Tuesday, Congressman Hank Johnson (GA-4) introduced a bill that improves prescription drug coverage, under both public (Medicare Part D) and private plans. The legislation is titled the Affordable Access to Prescription Medications Act of 2009 (H.R. 3799). This is companion legislation to S.1630 that was introduced by Senator Jay Rockefeller (D-WV).
People with multiple sclerosis could save thousands of dollars a year on their disease modifying therapies through this reform. The measure would cap monthly out-of-pocket costs for prescription drugs at $200 per prescription, or $500 per month for those taking more than one medication.
Take Action!
Click here to send a quick e-mail to your Representative asking them to co-sign H.R. 3799.
Background
The Affordable Access to Prescription Medications Act of 2009 (S. 1630) was first introduced by Senator Rockefeller on August 6. This legislation serves to protect individuals from high out-of-pocket costs on prescription drugs.
People living with MS and other chronic diseases or disabilities can benefit from this bill by lowering their out-of-pocket costs. All public and private insurance plans, including Medicare Part D prescription drug plans, would be addressed in this legislation.
People with multiple sclerosis could save thousands of dollars a year on their disease modifying therapies through this reform. The measure would cap monthly out-of-pocket costs for prescription drugs at $200 per prescription, or $500 per month for those taking more than one medication.
Take Action!
Click here to send a quick e-mail to your Representative asking them to co-sign H.R. 3799.
Background
The Affordable Access to Prescription Medications Act of 2009 (S. 1630) was first introduced by Senator Rockefeller on August 6. This legislation serves to protect individuals from high out-of-pocket costs on prescription drugs.
People living with MS and other chronic diseases or disabilities can benefit from this bill by lowering their out-of-pocket costs. All public and private insurance plans, including Medicare Part D prescription drug plans, would be addressed in this legislation.
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