Tuesday, May 27, 2008
Friday, May 23, 2008
Those families need your help. Click here and enter your ZIP code to send an e-mail to your Senators and Representatives urging them to support $53.3 million for the Lifespan Respite Care Act in the FY 2009 Labor-Health & Human Services-Education (Labor-H) appropriations bills.
Respite care is temporary care for a patient with the intention of providing relief for the primary caregivers. An estimated 50 million family caregivers nationwide provide 80% of long-term care. For individuals who provide care to family members with conditions like MS, it's important to have assistance. In fact, respite care is the most frequently requested family support service, and it has been shown to help family caregivers maintain their own health and improve family life. Read more about the Lifespan Respite Care Act here.
In addition to e-mailing your legislators, we encourage you to make an appointment to meet in person with your Senators or Representative during the May 23-June 2 Memorial Day district work period to let them know about this important program and necessary funding. To locate their district office, click here.
Earlier this year, 29 members of the U.S. House of Representatives sent a letter to the House Appropriations Subcommittee on Labor, HHS, and Education urging full funding ($53.3 million) for the Lifespan Respite Care program in the FY09 Labor-HHS appropriations bill. In addition on March 13, 2008, the Senate passed an amendment, offered by Senator Hillary Clinton (NY) and Senator John Warner (VA), to the Senate Budget Resolution reserving $53 million for Lifespan Respite programs in the Federal Budget. While this amendment does not guarantee funding, it is a critically important step and will make it easier to secure funding during the current appropriations process.
Thank you for being an MS activist. Join the movement at www.nationalMSsociety.org/advocacy.
Wednesday, May 21, 2008
Weyman lives with MS and is a long time supporter of MS research and embryonic stem cell research. His testimony was particularly powerful on a day when 400 other MS activists were in offices across Capitol Hill influencing public policy decisions.
Weyman's testimony included the following statement:
Embryonic stem cell research remains one of the most promising avenues of research to cure diseases and end suffering. I am not a scientist, but I am an observer of science. And I know that science is a matter that requires some patience. That's why we must not abandon the important work done to date with embryonic stem cell lines. The research must continue. So we can improve the lives of people with chronic diseases and conditions. So we can improve the lives of families for generations to come. For my grandchildren and for yours.
Read more about the hearing and Weyman's complete testimony here.
Stem cell research will likely be a key issue in the next Congress, and the Society will be active in the promotion of legislation to support more funding for stem cell research.
Monday, May 19, 2008
“Multiple sclerosis is a challenging disease that affects hundreds of thousands of Americans,” U.S. Senator Dick Durbin (D-IL) said. “I hope our efforts on the federal level can assist in unraveling the mystery of MS. We must do everything we can to increase research into diagnosing and treating this disease while working to improve the lives of those living with MS. I thank the Society for this wonderful award, but the tireless work of advocates on this issue deserves the real recognition.”
Friday, May 9, 2008
“It has been a privilege working with The National Multiple Sclerosis Society. I have been continually impressed by the devotion and talent of so many individuals’ work to eradicate MS. I am truly honored to be recognized by such a worthwhile organization. Together we can continue to raise awareness and fund research so that those who suffer with MS and those who love them will live to see a cure,” Congressman Russ Carnahan said.
Click here for more information on Congressman Carnahan's web site.
Tuesday, May 6, 2008
Monday, May 5, 2008
- Increase federal investment in MS research through the Congressionally Directed Medical Research Programs (.pdf)
- Eliminate the Medicare 24-month disability waiting period (.pdf)
- Establish an accurate measure of the incidence and prevalence of MS in the United States (.pdf)
- Join the Congressional Multiple Sclerosis Caucus in the House and Senate (.pdf)